When you were first diagnosed with Dysautonomia/POTS you probably thought that you would never be able to have a night life again. Is that really true though?
As you recover and get to know your limits with a chronic illness, you may find that more is possible than you think, you just need to know how to prep for it.
Listening to music live has always been one of my favorite things to do. I remember seeing my first concert in middle school with Paramore opening for No Doubt. And since then, I’ve loved going to a few shows every year for some of my favorite bands.
But after being diagnosed with POTS, that part of my life seemed to come to a screeching halt… for the moment. Concerts create an environment that will flare my POTS like no other. They are hot, loud, crowded, late at night, and most importantly, often don’t have seating.
Surprisingly, despite this, I have been to three concerts in the past two years with POTS. At each one, I tried out new things to help with my symptoms and they just keep getting better and better. Recently, I went to see Lord Huron at a standing-only venue and had one of the best nights in a long time. How was that possible? Simple: I knew how to prep…and I was lucky I was already having a good POTS day.
The most important tip I can give for anyone ready to go on an adventure with POTS is to know your body and to know where you are going. The venue had ADA seating, which allowed me a free seat on a raised platform with one of my friends throughout the concert. We got early door access and were able to watch the concert with an awesome view out of the crowd.
Heat and loud noises are the biggest issues for me, so I make sure that I have everything I need to stay cool (cooling packs) and hydrated (water and electrolytes). I also wear ear plugs throughout to reduce adrenaline surges caused by the loud noise.
So what else do I pack and why? Check out this video for the full details:
What’s in my purse:
- UnderCool ice packs
- 6 Phase58 Polar Products thick ice packs
- 2 Phase58 Polar Products thin ice packs
- 2 Trioral ORS packs
- Medications, pill crusher/splitter
- Bag of Vitassium Salt Sticks
- Vogmask N99 mask
- Folding fan
- Handicap placard and doctor’s note
- Foam NRR 30 ear plugs
- Burt’s Bees lipstick
- Hand sanitizer